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Twins and Muiltiple Births Heritability Study (TAMBAHS)

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The Twins and Multiple Births Association Heritability Study (TAMBAhs) is a joint project co-ordinated and managed by a multidisciplinary collaborative group consisting of clinical and academic members of the University of Birmingham, The Internarional Network for Knowledge about Wellbeing (ThinkWell) at the University of Oxford and the Twins and Multiple Births Association (TAMBA).
 
The principle aim of this project is to investigate the genetic and environmental effects on several aspects of child growth and behavioural development through the recruitment of a large number of twins and their parents for genetics studies and questionnaires.  This is a public involvement project and parents and twins can self-recruit over the internet and take our survey.
 
A secondary objective of the project is to explore participants self-perceived information needs.  We are recording the amount of information people seek before they consent to participate in the survey. This website provides all the information needed about the study in a way that is chosen by the deliberate decisions of participants.  Participants can drill down and gradually get more detailed information if they choose to do so.  By giving information in this way, participants are able to select the amount of information they wish to read before decide whether to complete the survey. The purpose of this project is to contribute to the debate about how much information is adequate information to make a decision to participate in research.  It will provide information that will help ThinkWell and other researchers strike a balance between too much information (which may irritate participants and indeed deter people from participating) and too little information (which potential participants might find frustrating or which could compromise informed consent).
 
For a more detailed explanation of the project and how you can participate in the study click here or contact the project manager of this study Evangelia Antoniou by email or telephone her 0121 414 4532.
         
       

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